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A Quiet Storm Inside

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It might seem like I only write when something goes wrong, but truthfully, things haven’t been bad for me in recent years. I’ve realized that when life feels normal, I don’t really feel the urge to write (definitely something I should work on). But when something upsetting happens, I feel the need to express it somehow. That’s probably why my posts often come across as sad, though my life isn’t defined by sadness. It’s not that I want to get pity either—it’s simply and purely a way to vent for me.

This morning, I woke up with half of my face numb and difficult to move, kind of like the sensation after dental anesthesia. I asked ChatGPT about it, Partial facial paralysis, and it advised me to see a doctor, just in case it was something serious like the beggining of a stroke. Thankfully, the doctor said it’s temporary—likely inflammation in the facial nerve. I’ve been prescribed medication, and with a bit of luck, I should be back to normal in a few weeks. Still, talking and eating have become a challenge—it feels like I’m speaking like a mix between Elmer Fudd and Sylvester from Looney Tunes, and food tends to get stuck in my cheek or I nearly bite my lip constantly.

Stress might be playing a role too—hard to say. But honestly, what’s been weighing on me most is my brother’s condition. He has advanced-stage HIV, which has led to tuberculosis (I commented that days ago, i knew was HIV then but someway didn't feel like saying the complete report), now he has hepatitis, herpes, problems with his sight and other complications due to his weakened immune system. He can’t start HIV treatment because antiretrovirals can cause dangerous inflammation when TB is present, and he can’t be treated for TB because his liver can’t handle the medication. The doctors had to stop his treatment as it posed an immediate threat, and given the combination of HIV and TB, things look very grim. We can't even visit him due to his extreme vulnerability. Only able to use the phone to comunicate,  It's heartbreaking to feel so helpless.

Ironically, I’m the one holding things together. My sister spends her days at the hospital and cry each time we receive the doc's report, my father expresses his pain through anger, and I try to support everyone—though I carry my own sadness too. I also feel anger, because this could’ve been prevented had my brother been more responsible. We all encouraged him to get HIV test for the latest 3 months due his weight loss and darkened skin color, Ii did it twice, my mom, my sister, even my dad also told him to do the test, but he ignored us. So I’m left feeling both angry and deeply sad.

In the end, my facial issue is the least of my concerns. I’m confident that will improve. I may need to postpone my cataract surgery due to the expenses I’m covering for my brother, and potentially more if things take a turn for the worse. Thankfully, I’ve saved some money and I'm managing. Thanks for taking the time to read this—it really helps to share.
Viewed: 159 times
Added: 2 weeks, 4 days ago
 
MviluUatusun
2 weeks, 4 days ago
Don't worry.  You're no different than anyone else when it comes to writing journals.  Most of us don't think about telling everyone when things are going good (I'm terrible about that myself), we only write when we need to vent.  

I can't say I understand what  you're going through especially with your brother.  I know you're probably angry that he ignored everyone when you told him to get tested, but I know a lot of people like that.  My sister had a problem and a friend of hers who was a doctor looked at her.  He told her to go to a doctor immediately.  She passed it off.  Later, we found out that she had lung cancer.  So, I know what it's like to have someone who ignores good advice.

I hope and pray that things get better for you soon.  Don't give up hope.  Sometimes when things seem to be at their worst, they start getting better.
bbmbbf
2 weeks, 4 days ago
Thank u so much for your words ^^
MviluUatusun
2 weeks, 4 days ago
You're welcome.  I know how painful the things you spoke of can be and how hard it can be to speak about them.
Dalesql
2 weeks, 4 days ago
I had something similar happen to me several years ago.   I thought I was having a stroke so ran right to the doctor.  They put me on some steroids and it cleared up in about a week.  
    But.... The steriods messed me up mentally.   You may have heard the term Roid Rage.  From steroid abusers.    Inside my head I felt perfectly normal.  But I was driving to work and it seemed like everyone else on the road was just driving really slowly, and I lost patience and was weaving through the traffic and driving fast.  Then I looked down and saw the speedometer and I was driving around 90 in a 45 zone.    I was very surprised, but I slowed way down. I was constantly sanity checking my actions as my patience was nearly nonexistant until I tapered off on the meds.     I hope you get better soon, and be careful the meds are not messing up your brain.  
ElfenSciuridae
2 weeks, 4 days ago
First off ChatGPT is stupid. Any intelligence based on the gathering of  information from the internet from forms, Redit, Facebook and many interactive websites (yes 4-chan archives too!), can not be intelligent and can not be trusted at all. You should ignore and never use it again. All you did was just add to its knowledge on how to interact with others with the small bit of information you gave it.. You would have done batter with a Magic 8 Ball.

I believe that one should be able to release what they feel needs to be let out - good or bad. It keeps one stress and pressure free. As is you are doing a lot for your family, which can be stressful within itself. TB under INH treatment can take 1 year to treat and cure. Living with advanced HIV, one may not have that year to spend. He needs to talk with his doctors for a treatment that deals with both at the same time. But one has to have a mindset of wanting to live and to fight to live to win the fight they are going through.

Unfortunately the weight loss may not be from HIV, but from the TB or both. Both have been known to waste the body in its later stages. That means he has be both for a long time without treatment. So it is best that he is getting treatment. It is the rest of the family you need to put up defenses against as they are putting on additional stress that does not belong there. You need to sit down and talk with them about it, and about taking things are they are because they are not medical doctors and they can not help, but adding stress tot he situation can make things go wrong. Chilling out and taking things as they come will improve things for everyone.

I can say that in having through through hell with my family. Now that I have become the oldest living member and the title of family patriarch fell on me, I refused it and destroyed it. My family suffered too much run the rule of the past generation thinking they can do and say things to force the family as they wish. Illness/health, crimes, violence, accidents - took the previous generation of family leaders and outside family friends who thought they can worm they way in to rob us if the wealth the family has. Its a joke, really. Money, political power, fame - all a joke. I took what the family has.and put it all into trust funds for the young children to have something when they grow up.

With that one, no more stress, no more pressures, no more demands, no more wanting to kill somebody for getting on my nerves. Live is not exactly at peace but it is almost there.

You can do it, though it is a hard road to walk through. I wish the best for you and your family.
bbmbbf
2 weeks, 3 days ago
my friend, this is not about chatgpt, in fact I was about to ignore my syntomphs (just like my brother with HIV),  and just wait for the symptoms to go away, but chatgpt adviced me correctly to go to the doctor, and now i'm under treatment, i'm not discussing about how useful it can be, I understand you are against AI but but at least on this case it adviced me correctly (of course i'll never trust more on a AI than a real doctor, but chatgpt adviced me to go to see him)

Still thank u so much for your words and your empathy my friend, * warm hug *
SenGrisane
2 weeks, 4 days ago
Your own pain is valid too. You gotta treat yourself if you wanna continue treating others.
ruink
2 weeks, 4 days ago
hopefully that wasn't from a stroke, but glad you are okay.
Robthe1st
2 weeks, 3 days ago
I hope you're doing okay man.
KanbeNamura
2 weeks, 2 days ago
There's an old saying, "you can lead a horse to water, but you can't make him drink." You and your family warned your brother multiple times for him to do a self check up. You, your sister, and the rest of your family is doing the best you can but neither of you should beat yourselves up for the situation your brother is in. :( In fact he's very lucky to have you all as his family to still take care of him even in this bad circumstance he's in. :') Also too, you shouldn't have to shoulder all the burden on your shoulders, BBMBBF. :'< You need to talk to your close family and/or friends to vent too your frustrations of anger and sadness. It's not good bottling all that emotion up. :'(

I hope you feel better soon and I hope your family stays safe and sound, BBMBBF! <3
ButtercupSaiyan
2 weeks, 1 day ago
I'm sorry, the situation with your brother sounds heartbreaking.
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